Advance Care Planning for people with dementia – new guide

“My future wishes: Advanced Care Planning (ACP) for people with dementia in all care settings”, is a new guide launched by NHS England.

The guide provides signposting, information and support for colleagues in health, social

and community care settings, around advance care planning for people living with

dementia. It identifies key actions from the point of an initial diagnosis of dementia

through to the advanced condition, in order to highlight and prompt best practice

irrespective of care setting. It also considers situations where it has not been possible

to initiate an ACP / future wishes conversation early and provides some tips on how to

manage this.

The aim of this resource is to help practitioners, providers and health and social

care commissioners:

  • create opportunities for people living with dementia to develop an ACP through

initiating and / or opening up conversations;

  • ensure advance care planning is fully embedded in wider inclusive, personalised care

and support planning for dementia; and

  • ensure people living with dementia have the same equal opportunities as those

diagnosed with other life limiting conditions / diseases, in terms of accessing palliative

care services / support.

The guide also sets out information and resources around ACP that are already in use at

a local level.

The idea for this guide emerged from a workshop NHS England held in June 2017.

It has been developed with input from a diverse range of stakeholders. Contributors

include carers of people diagnosed with dementia, health and social care professionals,

NHS Foundation Trusts, charities, hospices and care homes. Stakeholder input has been

embedded in this guidance to ensure an inclusive, personalised approach for people

living with dementia that is responsive to their needs and preferences.


To access the guide click here.